Study Finds Telemedicine Improves Care for Children with Eye Cancer

The new research from eye care nonprofit Orbis International, supported by Heidelberg Engineering, shows how telemedicine improves outcomes for children with retinoblastoma through e-learning and virtual mentorship

NEW YORK, Dec. 20, 2024 /PRNewswire/ -- Orbis International announces new research that finds telemedicine can improve care for children with retinoblastoma, a form of childhood cancer that can lead to blindness. The study, published in JCO Global Oncology, is the first to show that virtual mentor-mentee relationships through Cybersight, Orbis's free telemedicine and e-learning platform, not only improves lives, but can save them by successfully transferring skills to eye care professionals in low- and middle-income countries.

Each year, about 9,000 children worldwide are diagnosed with retinoblastoma, but only 40% survive beyond three years. This is because 92 percent of these children live in low-and-middle-income countries, where retinoblastoma patients face late diagnosis and limited access to eye care. This groundbreaking research was supported by Heidelberg Engineering, a global leader in advanced imaging solutions. Their funding has been crucial in delivering e-learning webinars, alongside advancing research through Orbis's Cybersight platform.

"Retinoblastoma can be treated if caught early, but too often, it's not diagnosed until it's too late," said Dr. Hunter Cherwek, Vice President of Clinical Services and Technologies at Orbis International. "Many low- and middle-incomes countries don't have enough resources to provide proper care, but technology offers a solution. This study shows that telemedicine can improve health outcomes for children, especially in remote areas where pediatric eye doctors are scarce."

Cybersight has long been used to diagnose and treat diabetic retinopathy, retinopathy of prematurity, and other eye diseases, but this is the first research on its impact on retinoblastoma. The groundbreaking study explored whether Cybersight Consult – a component of the Cybersight platform that connects mentee doctors with expert mentors for advice on complex clinical cases – could improve care and treatment for retinoblastoma. Researchers also examined how virtual mentoring helps eye care professionals build expertise in retinoblastoma over time.

Researchers conducted a retrospective review of 653 Cybersight retinoblastoma consultations undertaken by 38 different mentees from 2004 to 2023. They found significant improvements in knowledge-sharing over this 20-year period, especially in three areas: understanding and recording patient symptoms, classifying the disease's type and how advanced it is, and the results of treatment for both the patient and their eye health. Cybersight's virtual mentorship approach helped mentees gain critical skills to treat retinoblastoma, especially in regions with few eye care resources.

Cybersight provides training, mentoring, and online courses to eye care professionals around the world. The platform has helped train eye care professionals in nearly every country and territory and counts around 15% of the world's ophthalmologists as registered users.

The study reveals the potential of using communication and digital technologies to help children around the world see – and survive.

About Orbis International
Orbis is an international nonprofit delivering sight-saving programs in over 200 countries and territories worldwide so that individuals, families, and communities can thrive. Currently, around 1 billion people across the globe live with completely avoidable blindness and vision loss. For over four decades, Orbis has been tackling this challenge by building strong and sustainable eye care systems that leave a lasting legacy of vision. Orbis runs dedicated in-country programs in Africa, Asia, the Caribbean, and Latin America; develops and implements innovative training and technology, including an award-winning telemedicine and e-learning platform, Cybersight; and operates the world's first and only Flying Eye Hospital, a fully accredited ophthalmic teaching hospital on board an MD-10 aircraft. For the past 11 consecutive years, Orbis has achieved Charity Navigator's coveted four-star rating for demonstrating strong financial health and commitment to accountability and transparency, placing Orbis in the top 3% of U.S. charities. For the past three years, Orbis has earned GuideStar's platinum Seal of Transparency. Since 2022, Orbis has earned "accredited charity" status from the Better Business Bureau by meeting all 20 of their standards for charity accountability. To learn more, please visit orbis.org.

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SOURCE Orbis International