ALPHA-1 FOUNDATION ENGAGES MIAMI COMMUNICATIONS FIRM TO ACCELERATE FUNDRAISING
The Weinbach Group Will Raise Visibility For A1F And Its Mission
Alpha-1 is a rare genetic condition that affects the lungs and/or the liver, with no cure to date. Lung-affected patients typically do not show symptoms until adulthood, when their lung function declines much more rapidly than in a typically aging adult. Patients are often diagnosed with emphysema and Chronic Obstructive Pulmonary Disease (COPD). Lung-affected patients are treated with augmentation therapy to raise the levels of alpha-1-antitrypsin protein in the lungs. This intravenous replacement therapy is derived from plasma donations from the blood of healthy donors. Patients can also be liver-affected, when the liver cannot break down the abnormal protein, causing liver damage and scarring, resulting in cirrhosis. There is currently no treatment for Alpha-1 liver disease besides liver transplantation. Alpha-1 is the second leading cause of liver transplantation in children.
"Nearly 90% of Alphas that exist, have no idea they have Alpha-1," said Scott Santarella, A1F President and CEO. "We hired The Weinbach Group because, as one of the leading healthcare public relations firms in the country, they will be able to raise visibility on this rare genetic condition, support our development efforts, and reach key audiences. This includes physicians and healthcare providers to test and diagnose patients earlier on their journey and to connect them with A1F to provide education, resources, and access to current therapies available."
A1F is one of the strongest rare-disease organizations. Over its 30-year history, it has deployed more than
As a result of its efforts, A1F has designed and launched innovative programs and services to help patients along their journeys. This includes a solid infrastructure to promote research and pioneer science, as well as the establishment of collaborative partnerships to advance the development of novel therapies. The essence of A1F's work has improved the quality of life for those diagnosed with Alpha-1.
"The Alpha-1 Foundation has done a remarkable job making a measurable and impactful difference in the trajectory of research, treatment, and patient support," said
Among its first activities, The Weinbach Group will work with A1F's leadership to determine the feasibility and potential messaging for a capital campaign. Then, the healthcare advertising agency will execute a communications program, including developing key messages, to help A1F optimize its already impressive fundraising success.
"Alpha-1 remains a hugely underdiagnosed condition, yet its impact on patients and families can be profound," said
With more than three decades of experience working with healthcare organizations, nonprofits, and patient advocacy groups, The Weinbach Group specializes in translating complex medical and scientific topics into clear, compelling communications that resonate with diverse audiences.
For more information about The Weinbach Group, or to schedule an interview, please contact Meieli Sawyer at (305) 668-0070 or [email protected].
About The Weinbach Group
The Weinbach Group, now in its fourth decade of business, consistently ranks among
The Weinbach Group, Inc.
(305) 668-0070
[email protected]
View original content to download multimedia:https://www.prnewswire.com/news-releases/alpha-1-foundation-engages-miami-communications-firm-to-accelerate-fundraising-302693073.html
SOURCE The Weinbach Group, Inc.
Serious News for Serious Traders! Try StreetInsider.com Premium Free!
You May Also Be Interested In
- Corgi Insurance Expands Into Trucking, Modernizing Fleet Coverage With Industry Veterans
- Texas Southern University Economic Impact Report Using 2023-2024 Data Shows $1.6 Billion Annual Contribution to Regional Economy
- FDA Approves LEQEMBI IQLIK® (lecanemab-irmb) Subcutaneous Injection as an Initiation Dose for Early Alzheimer's Disease
Create E-mail Alert Related Categories
PRNewswire, Press ReleasesSign up for StreetInsider Free!
Receive full access to all new and archived articles, unlimited portfolio tracking, e-mail alerts, custom newswires and RSS feeds - and more!



Tweet
Share